The Minnesota Tribal Alzheimer's Disease and Related Dementias (ADRD) Registry Project

The Minnesota Tribal Alzheimer's Disease and Related Dementias (ADRD) Surveillance System (2025-2028) is an Alzheimer's Association (AARGD-NTF-1306567) funded research study that aims to develop the first state-based Tribally owned and operated system for tracking the incidence, prevalence, and mortality of ADRD by and for American Indians. This project will aggregate ADRD data across participating Tribal communities using data linkage methods to identify American Indians in administrative health datasets. The overall goal is to build a comprehensive data system and public health surveillance model that supports culturally appropriate care, policy planning, and resource allocation for ADRD in Tribal Communities. The Minnesota Tribal ADRD Registry is being developed by Dr. Genelle Lamont (PI) (Bad River Ojibwe) and Cliff Whetung (Co-I) (Curve Lake First Nations, Ontario) at Memory Keepers Medical Discovery Team (MK-MDT) in partnership with Minnesota Tribes. Additional partners for the project include experts from the Minnesota Department of Health, the Great lakes Inter-Tribal Council Epidemiology Center, and Tribal Health/Public Health.