Selected Key Publications
Memory Keepers Medical Discovery Team Investigators
Lewis J and Jacklin, K. (2022) Providing optimal dementia support to Indigenous people in North America. In World Alzheimer’s Report – Life After Diagnosis: Navigating treatment, care, and support. Alzheimer’s Disease International. Chapter 5, pp 109-110. https://www.alzint.org/resource/world-alzheimer-report-2022/
Rhew SH, Jacklin K, Bright P, McCarty C, Henning-Smith C, Warry W. Rural health disparities in healthcare utilization for dementia in Minnesota. Journal of Rural Health. 2022 Jul 19. doi: 10.1111/jrh.12700. Epub ahead of print. PMID: 35852376.
Slater M, Bruser G, Sutherland R, Andrew M, Warry W, Jacklin K, Walker J. (2022) Wellness in the face of frailty among older adults in First Nations communities. Journal of Aging and Health. Published online April 15, 2022 https://doi.org/10.1177%2F08982643221085107
Walker JD, O’Connell ME, Pitawanakwat K, Blind M, Warry W, Lemieux A, Patterson C, Allaby C, Valvasori M, Zhao Y, Jacklin K. (2021) Canadian Indigenous Cognitive Assessment (CICA): Inter-rater reliability and criterion validity in Anishinaabe communities on Manitoulin Island, Canada. Alzheimer’s & Dementia: Diagnosis, Assessment & Disease Monitoring. June 8, 2021. 13:e12213. https://doi.org/10.1002/dad2.12213
Slater, M. Jacklin, K. Sutherland, R. Jones, C. Blind, M. Warry, W. Valvasori, M. Walker, J. (2021) Understanding aging, frailty and resilience in Ontario First Nations. Canadian Journal on Aging, Sept-15, 40 (3):512-517. https://doi.org/10.1017/S0714980820000276 Published Online on 15 September 2020.
Lindenbach J*, Morgan D, Larocque S, Jacklin K. (2020). Practitioner Empowerment, Older Adult Mistreatment, and Dementia. Canadian Journal on Aging / La Revue Canadienne Du Vieillissement, Oct-16, 1-15. DOI: https://doi.org/10.1017/S0714980820000136
Jacklin K, Pitawanakwat K, Blind M, Lemieux A, Sobol A, Warry W. (2020) Peace of mind: A community-industry-academic partnership to adapt dementia technology for Anishinaabe communities on Manitoulin Island. Journal of Rehabilitation and Assistive Technologies. Sept-16, 7:1-11 https://doi.org/10.1177%2F2055668320958327
Slater, M. Jacklin, K. Sutherland, R. Jones, C. Blind, M. Warry, W. Valvasori, M. Walker, J. (2020) Understanding aging, frailty and resilience in Ontario First Nations. Canadian Journal on Aging, Sept-15, 40 (3):1-6. https://doi.org/10.1017/S0714980820000276
Jacklin K, Pitawanakwat K, Blind M, O’Connell ME, Walker J, Lemieux A, Warry W. (2020) Developing the Canadian Indigenous Cognitive Assessment for use with Indigenous older Anishinaabe adults in Ontario, Canada Innovations in Aging Aug-31, 4(4):1-13. https://doi.org/10.1093/geroni/igaa038
Sean Wharton, David C.W. Lau, Michael Vallis, Arya M. Sharma, Laurent Biertho, Denise Campbell-Scherer, Kristi Adamo, Angela Alberga, Rhonda Bell, Normand Boulé, Elaine Boyling, Jennifer Brown, Betty Calam, Carol Clarke, Lindsay Crowshoe, Dennis Divalentino, Mary Forhan, Yoni Freedhoff, Michel Gagner, Stephen Glazer, Cindy Grand, Michael Green, Margaret Hahn, Raed Hawa, Rita Henderson, Dennis Hong, Pam Hung, Ian Janssen, Kristen Jacklin, Carlene Johnson-Stoklossa, Amy Kemp, Sara Kirk, Jennifer Kuk, Marie-France Langlois, Scott Lear, Ashley McInnes, David Macklin, Leen Naji, Priya Manjoo, Marie-Philippe Morin, Kara Nerenberg, Ian Patton, Sue Pedersen, Leticia Pereira, Helena Piccinini-Vallis, Megha Poddar, Paul Poirier, Denis Prud’homme, Ximena Ramos Salas, Christian Rueda-Clausen, Shelly Russell-Mayhew, Judy Shiau, Diana Sherifali, John Sievenpiper, Sanjeev Sockalingam, Valerie Taylor, Ellen Toth, Laurie Twells, Richard Tytus, Shahebina Walji, Leah Walker and Sonja Wicklum (2020) Obesity in adults: a clinical practice guideline. Canadian Medical Association Journal, Aug-4, 192 (31) E875-E891; DOI: https://doi.org/10.1503/cmaj.191707
Lindenbach J*, Morgan D, Larocque S, Jacklin K. (2020) Practitioner Experience with Mistreated Older Adults Who Have Dementia: Understanding Contextual Influences and Consequences. Journal of Interpersonal Violence. Published online July 26, 2020 https://doi.org/10.1177/0886260520943717
Jull J, King A, King M, Graham I, Morton Ninomiya M, Jacklin K, Moody-Corbett P, Moore J. (2020). A Principled Approach to Research Conducted with Inuit, Métis and First Nations People: promoting engagement inspired by the CIHR Guidelines for Health Research Involving Aboriginal People (2007-2010). The International Indigenous Policy Journal, May-25, 11(2). https://doi.org/10.18584/iipj.2020.11.2.10635
Shah BR, Slater M, Frymire E, Jacklin K, Sutherland R, Khan S, Walker JD, Green ME. Utilization of the healthcare system by Ontario First Nations people with diabetes: a population-based study (2020). Canadian Medical Association Journal Open (CMAJ Open) May-5, 8(2):E313-E318 doi: 10.9778/cmajo.20200043
Vélez, M. P., Slater, M., Griffiths, R., Shah, B. R., Sutherland, R., Jones, C., Jacklin, K., Walker, J. D., & Green, M. E. (2020). Diabetes during pregnancy and perinatal outcomes among First Nations women in Ontario, 2002/03-2014/15: a population-based cohort study. CMAJ open, Mar-19, 8(1), E214–E225. https://doi.org/10.9778/cmajo.20190195
Kapral MK, Shah BR, Green M, Porter J, Griffiths R, Frymire E, Slater M, Jacklin K, Sutherland R, Walker JD. Stroke Incidence, Care, and Outcomes in First Nations People with Diabetes in Ontario, Canada: A Population-Based Cohort Study. Canadian Medical Association Journal Open Mar-16, 8(1): E156–E162 doi: 10.9778/cmajo.20190199
Walker J, Slater M, Jones C, Shah B, Frymire E, Khan S, Jacklin K, Green M. Diabetes Prevalence and Incidence in First Nations People in Ontario, 1995-2014: A longitudinal cohort study using linked administrative data (2020). Canadian Medical Association Journal. Feb10, 192(6): E128–E135 doi: 10.1503/cmaj.190836
Cornect-Benoit A*, Pitawanakwat K, Walker J, Manitowabi D, Jacklin K. (2020) Nurturing Meaningful Intergenerational Social Engagements to Support Healthy Brain Aging for First Nation Older Adults. Canadian Journal of Aging, Apr 14,39(2):263-283 https://doi.org/10.1017/S0714980819000527.
Webkamigad S*, Warry W, Blind M, Jacklin K. An Approach to Improve Dementia Health Literacy in Indigenous Communities. Journal of Cross-Cultural Gerontology. Published online Dec 18, 2019 35:69–83 https://doi.org/10.1007/s10823-019-09388-2
Slater M, Green ME, Shah B, Khan S, Jones CR, Sutherland R, Jacklin K, Walker JD (2019) First Nations people with diabetes in Ontario: methods for a longitudinal population-based cohort study. Canadian Medical Association Journal Open. 7(4):E680-E688 Nov 24, 2019 doi: 10.9778/cmajo.20190096
Chu A, Han L, Roifman I, Lee DS, Green M, Jacklin K, Walker J, Khan S, Frymire E, Tu JV, Shah BR. (2019) Trends in cardiovascular care and event rates among First Nations and other people with diabetes in Ontario, Canada, 1996-2015. Canadian Medical Association Journal. Nov 25, 191(47):E1291-E1298 https://www.cmaj.ca/content/191/47/E1291
Shah BR, Frymire E, Jacklin K, Jones C, Kahn S, Slater M, Walker JD, Green M. (2019) Peripheral arterial disease in Ontario First Nations people with diabetes: a longitudinal population-based cohort study. Canadian Medical Association Journal Open. Dec 10, 2019 7(4):E700-E705. doi: 10.9778/cmajo.20190162
Webkamigad S*, Cote-Meek S, Pianosi B, Jacklin K. (2019) Exploring the Appropriateness of Culturally Safe Dementia Information for Indigenous People in an Urban Northern Ontario Community. Canadian Journal on Aging. E-pub DOI: https://doi.org/10.1017/S0714980819000606 Published online by Cambridge University Press: pp1-12, 04 November 2019.
Lindenbach J*, Morgan D, Larocque S, Jacklin K. (2019) Mistreated older adults with dementia in the home: Practitioner experience and unattainable professional agency. Journal of Elder Abuse & Neglect, Aug 27, 31:4-5, 373-401 DOI: 10.1080/08946566.2019.1657540
Lemieux, A.M. & Jacklin, K. (2019) Moving beyond privilege for all dementia patients. Brain, Behavior and Immunity Jun 5; PubMed PMID: 31173845.
Jacklin K and Walker J. Cultural Understandings of Dementia in Indigenous Peoples: A Qualitative Evidence Synthesis. (2019) Canadian Journal on Aging. Published online: 10 June 2019, 39(2):220-234. DOI: https://doi.org/10.1017/S071498081900028X.
Jones R, Crowshoe L, Reid P, Calam B, Curtis E, Green M, Huria T, Jacklin K, Kamaka M, Lacey C, Milroy J, Paul D, Pitama S, Walker L, Webb G, Ewen S. (2019) Educating for Indigenous Health Equity: A Consensus Statement. Academic Medicine 94(4):512-519. doi: http://doi.org/10.1097/ACM.0000000000002476.
O’Connell, M. E., Scerbe, A., Wiley, K., *Gould, B., Carter, J., Bourassa, C., Morgan, D. Jacklin, K., & Warry, W. (2018). Needs and worries about maintaining independence of rural/remote older adults: Opportunities for technology development in the context of the double digital divide. Gerontechnology 17(2):126-138. https://doi.org/10.4017/gt.2018.17.3.001.00
Ellis, K., Koumoutzis, A., Lewis, J.P., Lin, Z., Zhou, Y., Chopik, W., & Gonzalez, R. (2022). Conceptualizing and operationalizing collaboration among multiple caregivers of older adults. Journal of Gerontology: Social Sciences.
Brown, B., Pedersen, M., Harrington, J., Belcourt, A., Windchief, S., Thomas, A., Plenty Sweetgrass She Kills, R., Conroy-Ben, O., Brodt, E., Chief, K., Hoagland, S., Johnson-Jennings, M., Lewis, J., Green Mink, K., Milligan-Myhre, K., Calhoun, M., Ozburn, A., Simonds, V., Des Rosier Grant, A., Hill, S., Wu, K. (2022). Exploring personal, relational, and collective experiences and mentorship connections that enhance or inhibit professional development and career advancement of American Indian/Alaska Native faculty in STEM fields: A qualitative study. In review, Journal of Diversity in Higher Education. Advance online publication. https://doi.org/10.1037/dhe0000376
Pedersen M, Harris K.J., Lewis J., Grant, M., Kleinmeyer, C., Glass, A., Graham, N., Brown, B., & King. D. (2021). Uplifting the voices of rural American Indian older adults to improve understanding of physical activity behavior. Translational Behavioral Medicine, 4. https://doi.org/10.1093/tbm/ibab107
Lewis, J.P. (2021). What can a recovery model for Alaska Natives teach us about substance use and older adults? Generations,
Pedersen, M., Harris K.J., Brown, B., Anderson, K., & Lewis, J.P. (2021). A Systematic Review of Interventions to Increase Physical Activity Among American Indian and Alaska Native Older Adults. The Gerontologist. https://doi.org/10.1093/geront/gnab020
Wortman, E., & Lewis, J.P. (2021). Gerotranscendence and successful aging in the Aleutian Pribilof Islands, Alaska. Journal of Cross Cultural Gerontology. https://doi.org/10.1007/s10823-020-09421-9
Lewis, J.P., Suchy-Dicey, A.M., Noonan, C., Jernigan, V., Domoto-Reilly, K., Umans, J.G., Buchwald, D., & Manson, S. (2021). The contribution of binge drinking to vascular brain injury and structural atrophy in elder American Indians: The Strong Heart Study.
Journal of Aging and Health, 2108 NIDP Reunion Scientific Symposium, Special Issue.
Lewis, J.P., Noonan, C., Jernigan, V., & Manson, S. (2021). “Making sense of a disease that makes no sense.” Understanding Alzheimer’s Disease and related disorders among caregivers and providers in Alaska. The Gerontologist, 61(3), 363-373.
Book Chapters;
Jacklin, K., & Lewis, J.P. (2022). Providing Optimal Dementia Support to Indigenous Peoples in North America. Post-Diagnosis Support Theme. World Alzheimer’s Report, 2022.
Lewis, J.P. (2022). The role of laughter in the resilience and wellbeing of Alaska Native Elders. The Routledge International Handbook of Indigenous Resilience (pp. 208-221). Routledge/Taylor Francis.
Lewis, J.P. (2022). Reclaiming Our Identity Through Indigenous Cultural Generative Acts to Improve Mental Health of All Generations (pp. 181-194). Indigenous Knowledge and Mental Health. Springer Publisher.
Lewis, J.P. (2021). Generativity and Aging Well for Alaska Natives. (pp. 327-334). Aging Across Cultures: Growing Old in the Non-Western World. Springer Publisher.
Crouch, M., & Lewis, J.P. (2021). Alaskan Native Quality of Life: Culture, Rurality, and the Sacred. Quality of Life in the Countryside.
Lewis, J.P., Noonan, C., Jernigan, V., & Manson, S. (2020). “Making sense of a disease that makes no sense.” Understanding Alzheimer’s Disease and related disorders among caregivers and providers in Alaska. The Gerontologist, gnaa102, https://doi.org/10.1093/geront/gnaa102
Skewes, M., Gonzalez, V., Gameon, J., Firemoon, P., Salois, E.M., Rasmus, S., Lewis, J.P., Gardner, S.A., Ricker, A., & Reum, M. (2020). Health Disparities Research With American Indian Communities: The Importance of Trust and Transparency. American Journal of Community Psychology, Special Issue on CBPR Approaches to Understand and Addressing Health Disparities and Promoting Health Equity. https://doi.org/10.1002/ajcp.12445Brooks-Cleator, L.A., & Lewis, J.P. (2019). Alaska Native Elders’ perspectives on physical activity and successful aging. Canadian Journal on Aging/La Revue Canadienne due Vieillssement. https://doi.org/10.1017/S0714980819000400
Crowshoe, L., Henderson, R., Jacklin, K., Calam, B., Walker, L., & Green, M. (2019). Educating for equity care framework: Addressing social barriers of type 2 diabetes with Indigenous patient. Canadian Family Physician, 65(1): 25-33. PMCID: PMC6347314. PMID: 30674510.
Crowshoe, L. L., Henderson, R., Green, M., Jacklin, K., Walker, L., & Calam, B. (2018). Exploring Canadian physicians’ experiences with diabetes care for Indigenous patients. Canadian Journal of Diabetes, 42(3), 281-288. https://doi.org/10.1016/j.jcjd.2017.06.012.
Crowshoe, L., Han, H., Calam, B., Henderson, R., Jacklin, K., Walker, L., & Green, M. (2018). Impacts of educating for equity’s workshop on addressing social barriers of type 2 diabetes with Indigenous patients. Journal of Continuing Education in the Health Professions, 38(1), 49-59. DOI: 10.1097/CEH.0000000000000188. PMID: 29432332.
Jacklin, K., Henderson R., Green, M., Calam, B., Walker, L., & Crowshoe, L. (2017). Healthcare experiences of Indigenous people living with type 2 diabetes in Canada: Sequential focus group findings from diverse Indigenous contexts. Canadian Medical Association Journal, 183(9), E106-E112. DOI: 10.1503/cmaj.161098. PMCID: PMC5250516. PMID: 28246155.
Lewis, J. P., & Allen, J. (2017). Alaska Native Elders in recovery: Linkages between Indigenous cultural generativity and sobriety to promote successful aging. Journal of Cross Cultural Gerontology. 32:209-222. DOI: 10.1007/s10823-017-9314-8. PMID: 28478599.
Jacklin, K., Ly, A., Green, M., Calam, B., Walker, L., & Crowshoe C. (2016). An innovative sequential focus group method for investigating diabetes care experiences with Indigenous peoples in Canada. International Journal of Qualitative Methods, 15(1), 1-12. https://doi.org/10.1177/1609406916674965.
Henderson, J. N. (2015). Cultural Construction of Dementia Progression, Behavioral Aberrations, and Situational Ethnicity: An Orthogonal Approach. Care Management Journals. 16:95-105. PMID: 26171509.
Carson, L. D., Henderson, J. N., King, K., Klezenski, K., & Thompson, D. (2015). American Indian Diabetes Beliefs and Practices: Anxiety, Fear, and Dread in Pregnant Women with Diabetes Mellitus. Diabetes Spectrum. 28(4):258-263. DOI: 10.2337/diaspect.28.4.258. PMCID: PMC4647171. PMID: 26600727.
Jacklin, K., Pace, J. E., & Warry, W. (2015). Informal Dementia caregiving among Indigenous communities in Ontario, Canada. Care Management Journals, 16(2), 106-120. PMID: 26171510.
Carson, L. D., Henderson, J. N., King, K., Kleszynski, K., Thompson, D., & Mayer, P. (2014). Perceptions and Concerns Regarding Diabetes Mellitus during pregnancy among American Indian Women. Care Management Journals. 15(4):160-169. doi: 10.1891/1521-0987.15.4.160. PMCID: PMC4540065. NIHMSID: NIHMS695877. PMID: 26294897.
Henderson, J. N. (2014). Savvy Caregiver for Indian Country. National Indian Council on Aging. Albuquerque, NM.
Jacklin, K., Walker, J., & Shawande, M. (2013). The emergence of Alzheimer’s disease and dementia as a health concern among First Nations populations in Canada. The Canadian Journal of Public Health. 2013; 104(1), e39-e44. PMID: 23618107.
Jacklin, K., & Warry, W. (2012). Forgetting and forgotten: Dementia in Aboriginal seniors. Anthropology and Aging Quarterly, 33(1), 13.
Jacklin, K., & Warry W. (2011). Decolonizing First Nations health In J. C. Kulig & A. M. Williams (Eds), Health in Rural Canada (pp 373-389). Vancouver, Canada: University of British Columbia Press.
Warry, W. (2007). Ending Denial: Understanding Aboriginal Issues. Reprinted 2008, 2009. Broadview/University of Toronto Press, pp.220.
Henderson J. N. & Traphagan, J. (2005). Cultural Factors in Dementia: Perspectives from the Anthropology of Aging. Alzheimer’s Disease and Associated Disorders. 19(4):272-274. PMID: 16327358.
Henderson J. N. (2003). Alzheimer’s Units and Special Care: A Soteriological Fantasy. In P. Stafford (Ed.). Gray Areas: Ethnographic Encounters with Nursing Home Culture. Santa Fe: School for American Research Press, pp. 153-172.
Henderson J. N., & Henderson L. C. (2002). Cultural Construction of Disease: A “Supernormal” Construct of Dementia in an American Indian Tribe. Journal of Cross-Cultural Gerontology. 17(3):197-212. http://dx.doi.org/10.1023/A:1021268922685.
Henderson J. N., Crook, R., Crook, J, Hardy, J., Onstead, L., Carson-Henderson, L., Mayer, P., Parker, B., Petersen, R., & Williams, B. (2002). Apolipoprotein E4 Allele and Tau Allele Frequencies Among Choctaw Indians. Neuroscience Letters. 324(1):77-79. PMID: 11983299.