Indigenous Cultural Understandings of Alzheimer’s Disease and Related Dementias – Research and Engagement (ICARE)

The Memory Keepers-Medical Discovery Team (MK-MDT) has been awarded National Institutes of Health (NIH) funding through the National Institute on Aging (NIA) for their grant entitled, “Indigenous Cultural Understandings of Alzheimer’s Disease and Related Dementias – Research and Engagement (I-CARE)” R01AG062307 for another five years (2021-2026). ICARE was previously funded for two years to collect preliminary data (1R56AG062307-01).

This research is the second phase of ICARE and will address dementia disparities by examining how culture and community-specific context shape Alzheimer’s disease and related dementias (ADRD) illness experiences in Indigenous populations. Using ethnographic and community-based approaches the team will integrate the Indigenous lived experiences of ADRD in the creation of culturally appropriate and safe approaches to improve dementia diagnostics, care and outreach.

Memory Keepers researchers: Drs. Kristen Jacklin (PI), Wayne Warry (Co-I), and Jordan Lewis (Co-I) have partnered with the Red Lake Nation and the Grand Portage Band of Lake Superior Chippewa, Drs. Carey Gleason (Co-I) and Megan Zuelsdorff (Co-I) from the University of Wisconsin-Madison, the Oneida National Commission on Aging, and NAANDWECHIGE-GAMIG Wikwemikong Health Centre, M’Chigeeng Health Centre, and Mnaamodzawin Health Centre, Ontario.

March 2021: Medical Discovery Team Awarded $7.5M to Improve Knowledge of Indigenous Cultural Understandings of Dementia Care

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Funding: This research was generously supported by the National Institute on Aging (1R56AG062307-01, R01AG062307 PI: Jacklin).

Acknowledgments: 

Memory Keepers Medical Discovery Team, University of Minnesota Medical School, Duluth and Minnesota at large: Dr. Kristen Jacklin (PI), Dr. Wayne Warry, Dr. Jordan Lewis, Dr. Melissa Blind, Dr. Dana Ketcher, Brooke Metz, Melinda Dertinger, Brandylyn Arrendondo, Patrick Bright, Tracy Kemp, Collette Pederson, January Johnson, Red Lake Nation, Grand Portage Band of Lake Superior Chippewa.

University of Wisconsin Alzheimer’s Disease Research Institute: Dr. Carey Gleason (site PI), Dr. Megan Zuelsdorff, Dr. Nikolas Lambrou, Marlene Summers, Lois Strong, Wes Martin, and the Oneida Nation.

Ontario, Canada: Seven First Nations on Manitoulin Island (Wikwemikong Unceded Reserve, M'Chigeeng First Nation, Sheguiandah First Nation, Sheshegwaning First Nation, Wauwauskinga First Nation, Zhiibaahaasing First Nation, Aundeck Omni Kaning First Nation), Wikwemikong Health Centre, Mnaamodzawin Health Services, Noojmowin Teg Health Centre, M'Chigeeng Health Services, Rhonda Trudeau, and Karen Pitawanakwat.